Friday, July 30, 2010

Lauren update

We had our Neurology follow up today. Ever since we switched her medication everything seems to be going really well.  We haven't seen a siezure in almost three months. Just because we haven't seen them does not mean that she isn't having them, though. On Aug. 26th we are going to do a 24 hour EEG to see what her brain activity is. They are looking for little "siezure bursts" that last 5 seconds or longer. Those are the ones that will effect her driving and activities as she gets older. She has to be two years siezure free before we can bring her off the medication. When she is 6 1/2 we will try to wean her off the meds and see if she is still having any issues. If she doesn't show any siezure signs then there is a good chance she might have grown out of them. If she does show signs of siezures, we will put her back on the meds an wait another two years. We will continue this process until she hits puberty. Taking things one day at a time is a lot easier said than done for me. It is still really hard not to dwell on what her teenage years might look like!  Thank God that for the time being  things are calm for her.

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